Myself and Ben Have both contacted the minister for Lyme Disease - Lord O'SHAUGHNESSY TO GET THE UP TO DATE DETAILS ON WHAT PUBLIC HEALTH ENGAND ARE DOING ON THE SUBJECT OF LYME DISEASE.
The All-Party Government Group for Lyme Disease will be meeting on the 8th May, 2018. Five representatives
from Lyme Disease UK will be in attendance.
The NICE guidelines were released on the 11th April and did not bring about ANY dramatic change.
I met with Ben Wallace briefly on the 1st May, which was all positive. As always he is an amazing support.
NICE guideline published October 2017.
Doxycycline, amoxicillin [unlicensed indication] or cefuroxime (as cefuroxime axetil) are the antibacterials of choice for early Lyme disease or Lyme arthritis. If these antibacterials are contra-indicated, a macrolide (e.g. clarithromycin) can be used for early Lyme disease. Intravenous administration of ceftriaxone, cefotaxime, or benzylpenicillin sodium is recommended for Lyme disease associated with cardiac or neurological complications. The duration of treatment is usually 2–4 weeks; Lyme arthritis may require further treatment.
NOV, 2017 - NHS choices change their website:
Now 'POST-LYME', ON GOING SYMPTOMS AFTER 2-4 WEEKS OF ANTIBIOTICS IS RECOGNISED AS A PROBLEM BUT CHRONIC LYME THAT NEEDS ON-GOING TREATMENT IS NOT YET RECOGNISED.
MEETING with local MP- Ben Wallace:
On the 24th November I had the pleasure of a private meeting with my local MP BEN WALLACE. WE DISCUSSED THE CURRENT SITUTATION AND THE DISMISSIAL BY TH GOVERNMENT AND THE HEALTH PROFESSIONALS ABOUT LYME DISEASE. HE IS EUTHASATIC ABOUT HELPNG AND CONTACTS MINISTERS.
'I fight not just for my own health, but for future generations and I won't rest in peace until I succeed!'- Sophie Ward