Another intensive day.
You may question why I feel so exhausted when in reality I am just sat and laid around all week.
Reactions and heightened pain & symptoms actually really tires you out. Exhausting.
You are just trying to hold on, be positive and get through all the infusions and foods we are testing.
Today has gone quicker - no, I was still at Breakspear 8.30am until 5pm-Ish. But with my reaction to olive oil this morning causing me to forget part of my morning I felt I was only 'in' for an hour or so this morning then 4 this afternoon.
I was in all day though.
We didn't get through all the food intolerance testing this morning due to my bad reaction to olive oil. Which as you all know many restaurants use in sauces, to cook rice, veg in , salad dressings and poured on well- most things! Many chips are also cooked in either veg or olive oil and that is why I have such a horrible reaction to these foods and why eating out is such a task! Because, everything it seems these days contains oil. Whether it's cooked in oil, had oil added to the dish or being marinating in oil. Just crazy.
I felt so rough and was literally just force feeding my lunch down to get it done. Feel so sick and have a stomach ache I can't shake off.
It's the worst.
This is a lot harder than I expected. I thought it would be uncomfortable at times but not causing me these kind of reactions and wiping me out so much.
Leaving me not even wanting to go out in the evenings for dinner - which is not like me. Normally I want to see life and feel life around me. Though these are knocking me well and truly. I feel so zapped and unwell that I can't focus on what's going on around me or enjoy an atmosphere. I am in too much pain and too tired to cherish it.
Last night was lovely seeing my Godmother after a decade. Wow, such a long time. However, I felt awful. I managed to get my stomach ache under control and bareable before leaving the hotel. I was ok for the first hour, but after an hour my eyes were going, brain fog, light sentivity and blurred vision were taking over. I felt tired from talking. I felt bad because I wanted to be able to stay all night and really catch up. Do a lot of talking, however I just wasn't with it.
We managed 2 hours and when it got to coming up to 10pm we called the uber and headed back.
A brownie & green tea and a sleep.
Due to reaching a high level of 14 on the intolerance level for olive oil today. We are yet to get an end number so testing on olive oil will continue tomorrow. I need an end result for them to make up the 'cocktail - vaccine ' I will take or inject daily to build my tolerance levels up to these products.
Who knows what tomorrow will bring. The nurses are all hoping and have said to me they hope tomorrow is better for me.
Reading and hearing stories of paitents who were once in my position and have been coming for years receiving treatment but now being able to live a better life because of all this it helps to keep you motivated and keep you fighting through.
I have a full comprehensive blood test tomorrow to monitor my protein levels, liver function, kidney function, iron levels, white and red blood cell count and more. So my GP can clearly see where my health is at and we can see if I am keeping everything functioning as it should with all my medications and infusions I am undergoing.
Exhausted but still fighting through - trying to keep the smile on my face.
Love and peace