Yay, school is out.
Holidays, picinis, outdoor fun, walks and more to look forward to and so we should be looking forward to enjoying the sun and outdoors. However we must be Lyme smart and educate ourselves about the threat of Lyme so then we can enjoy the above activities and never be affected by this soul destroying disease.
So here are a few shocking facts.
* Lyme affects people aged 5-14 year olds more than any other age group.
* 25 per cent of Lyme cases are in children.
* 50 per cent of people who have contracted Lyme through a bite have their bite dismissed by the doctor.
* 1442 children contract Lyme each week in the USA.
* 205 children contract Lyme each day in the USA.
* 41 percent of children affected have suicidial thoughts.
* 11 per cent commit suicide.
Children with Lyme disease are more likely too:
* Have lower grades in school.
* Struggle maintaining friendships & relationships.
* At much greater risk of depression.
* Have debilitating fatigue and pain.
* Have outbursts or mood swings.
* Struggles processing information.
79% of children say their number of friends decreased.
Awareness is more important than ever - nobody wants their children to experience the above and really that's just skimming the surface.
The debilitating symptoms and affects on not only the child's life but yours & the family's is massive. A heart ache, strain and pain nobody deserves to feel.
Don't dismiss a bite as just an insect bite that will right itself in a few days.
Time is of the essence!
If spotted and noticed early a strong 2 week to a month's worth of antibiotics will help kill the Lyme bacteria off that is making its way through your bloodstream. Longer than a month of misdiagnosis or ignorance will have allowed the bacteria time to work its way into your cells, tissues and major organs. This unfortunately means that the bacteria is able to hide itself as well as it begins changing your DNA so that your immune system no longer see's it as a threat & toxin to the body. So therefore won't attack the bacteria. Allowing the bacteria to begin causing serious damage on the body.
Now leading you to experience symptoms that you may have to learn to live with.
Lyme disease can lay doremant for many years. Up to 30 in fact. You don't have had to have been bitten recently to begin with the common Lyme symptoms.
The fact that Lyme is known as the ' great imitator ' because the symptoms paitents suffer mirror other illnesses & diseases. Leading it to be difficult to get a diagnosis. We also have the big issue of that fact that only 50 per cent of cases come out in a bullseye rash. Even if you are bitten but don't come out in a rash does not indicate that you are in the clear.
Still get checked.
If your local GP and doctors dismiss you then I highly recommend you contact Armin Labs in Germany. They will send you a pack with blood sample test tubes. Which you take to a day clinic and have the bloods required taken. Then you must visit the local Fed Ex office to send the bloods back to Armin for testing.
Not even all negative test results mean you are negative and clear of the disease.
We always have the difficulty of the local doctors accepting positive test results.
This is due to the fact the way in which the bloods are tested abroad is not accepted as method within the UK. The testing process is even yet to legalised in the U.K. As places such as Finaland, Germany and America are already using this high advanced way of testing.
So positive or negative they are still likely to dismiss the result.
In articles doctors within this country have argued that Lyme is non-existent in this country and is a 'Dustbin Disease'. They particularly, along with most of the world do not believe chronic Lyme exists.
300,000 in the US are diganosed with Lyme each year.
45,000 are diganosed in the U.K. That number of people would fill the Olympic Stadium in London. The NHS play this figure down to 2-3,000.
Treatment and testing is so expensive and lack of research leads treatments and tests to often mean you are playing more of a Russian Roulette game, never knowing what may help you or what will set you back.
All infected paitents are different and suffer slightly different. We all suffer with different co-infections on top of the Lyme. So symptoms, and responses to treatment are different. Every case has to be treated in an unique and personal way.
This causes the daily struggle, treatment & testing is 200 per cent more complex to your normal virus.
We are dealing with the Oxbridge brain boxes of the virus family here. We have to be on the ball game as much as we possible can be. As they are definitely smart!
It's truly upsetting to me the brick walls the NHS put up for patients so they are misdiagnosed, aren't able to get treatments & tests carried out & put their own ego's before the care of the patients.
Always following what the textbook says. Not willing to educate themselves and keep up to date with diseases etc.
Lyme is known throughout the whole world now as the hidden epidemic. A bigger killer than HIV so how can we afford to keep ignoring this disease and giving the line 'it doesn't exist'. The evidence is there infront of everyone, showcasing hundreds and thousands of cases.
Affecting celebrities who have openly spoken about their struggles, past President's and public figures.
Nobody is immune!
You may feel like superman- but believe me none of us are.
Patients not only have to pay thousands and thousands of pounds for treatments to keep them stable, and some normality for their lives or they are forced to go for months on end seeking treatment in other country's.
Often faced with lawsuits when they return from the NHS.
We all deserve health.
And if Lyme didn't exist or was a dust-bin disease then why would the NHS want to sue the companies, medical teams and hospitals abroad for treating an non-existent disease. Doesn't really add up or make sense does it.
The reality is their ego's are worth more to them than our health. So this is why we have to do the research, fight and seek our own treatment route.
Us as patients or one could say sadly slaves to Lyme need to raise our voices and educate and spread as much awareness as possible. To save others from having to live through the torture that life becomes for many who contract the disease.
Please, I beg you with all my heart to take note and listen to this post. Making sure you do all that is within your power to avoid contracting Lyme.
And keep spreading the word - raise your voice as loudly as you possibly can.
We all deserve the best life that we can live. Especially our children - so protect them this summer.
This post took me a while to put together. Since returning home, heightened pain, exhaustion and brain fog makes everything 100 times more tasking. This post as I sit here in unbearable pain, tears rolling down my cheeks, having been bedridden and missing the sun today - is why! I put these posts together! Why at times I may come across pushy. It's because I wouldn't wish this on ANYONE! Until you are affected unfortunately you never fully understand so probably think I am talking utter rubbish. What I write here, what research I present you comes from the heart in hope I can help!!
With schools recently breaking up this is the time to be alert and educated.
Take care my beautiful souls.