Suffering with a chronic illness can often feel like living a double life.
Here are some of our secrets we commonly use and try to hide and what they mean.
1. A good day doesn’t mean a pain free day it just means it’s a better day.
2. Just because I smile does not mean I am not falling apart. We can all put on a disguise.
3. It’s not in my head.
4. Some days I can function and some days I really can’t.
5. When I say I can’t afford to get sick I mean I can’t afford to get sick. Having a suppressed and comprised immune system is no laughing matter and can be dangerous.
6. I am pushing myself, often pushing myself too much.
7. I miss normal life too much to hear you complain about you being able to live yours.
8. Chronic illness does not understand time. It’s not over in an hour, a day, a week.
9. We can go from good, holding it together one minute to bad, it’s all too much the next.
10. I am not lazy, I am beyond exhausted!
11. I live with the guilt my pain and condition puts on my loved ones. The guilt haunts & eat away at me every second of everyday.
12. I have aced the art of lying about how serious my pain is.
13. The pain is more than a slight discomfort.
14. Chronic illness has no age limit or body type.
15. A good attitude doesn’t soothe the amount of pain I feel. It just keeps me strong and those around me strong.
16. This is my life - pain. It’s endless, it’s cruel and it hurts like hell.
17. I don’t know what it’s like to feel pain free.
18. I live a double life. Alone falling apart and barely coping. Infront of the world a strong, fighter not bothered by pain.
19. I hate feeling forgotten. Having to turn down or miss events, parties, gatherings and work commitments. People don’t remember to ask you anymore. Or you are too much trouble.
20. This is my reality, there is no cure. You have to come to terms with that fact so you can work with the pain and not fight it. At some point hopefully there will be a cure. For that day we keep dreaming!
21. I didn’t ask for this nor did I ever want to lose myself.
22. My illness won’t define me, my dreams do.
23. We are learning how to cope all the time . We can’t be expected to be perfect all the time.
24. We don’t explain our pain because we know people won’t understand and we don’t want to bore you.
25. We ignore the pain as much as we can because we hate it being a part of our lives.
Suffering from chronic illness whether you are young or older is hell. We don’t wish this nightmare on anyone. We really don’t.
We try to be as positive as we can so please respect that and work with us.
Thank you for taking the time to read this blog and I hope it has sparked some thoughts at how life is for someone who is unwell.