The Lyme World

April 14, 2018

We all know that here in the U.K.  Lyme disease is seen as a 'fake', 'curable' disease. It's threat is dampen down and dismissed by the Government and medical community. I thought today with Lyme disease awareness month, only two weeks away that it would be important to share the thoughts and information that country's around the world display on this hidden epidemic. The work of their foundations and support groups, battling the ignorance of their Governments and medical circles do and say. 

 

 

CANLYME - the Canadian Lyme Foundation display this information:

 

Symptoms

 

Lyme disease symptoms can appear quickly or gradually over time, and they are incredibly varied and can wax and wane. The first physical signs of Lyme infection are often flu-like symptoms – sore throat, headaches, congestion, stiffness, etc. – so many people, including doctors, dismiss the symptoms as the flu or the common cold.

During its nymph stage, a tick is only about the size of a period on a sentence. Many people are infected by nymph ticks, but don’t suspect Lyme disease because they don’t recall being bitten. In fact, 50% of people infected don’t remember being bitten and less than 50% of people will get any over-emphasized rash.

Symptoms of Lyme disease (Print Symptoms List)

Head, Face, Neck
  • Unexplained hair loss

  • Headache, mild or severe, seizures

  • Pressure in head, white matter lesions in brain (MRI)

  • Twitching of facial or other muscles

  • Facial paralysis (Bell’s Palsy, Horner’s syndrome)

  • Tingling of nose, (tip of) tongue, cheek or facial flushing

  • Stiff or painful neck

  • Jaw pain or stiffness

  • Dental problems

  • 10. Sore throat, clearing throat a lot, phlegm (flem), hoarseness, runny nose

Eyes/Vision (click here too)
  • Double or blurry vision

  • Increased floating spots

  • Pain in eyes, or swelling around eyes

  • Oversensitivity to light

  • Flashing lights, peripheral waves or phantom images in corner of eyes

Ears/Hearing
  • Decreased hearing in one or both ears, plugged ears

  • Buzzing in ears

  • Pain in ears, oversensitivity to sounds

  • Ringing in one or both ears

Digestive and Excretory Systems
  • Diarrhea

  • Constipation

  • Irritable bladder (trouble starting, stopping) or interstitial cystitis

  • Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

Musculoskeletal System
  • Bone pain, joint pain or swelling, carpal tunnel syndrome

  • Stiffness of joints, back, neck, tennis elbow

  • Muscle pain or cramps, (Fibromyalgia)

Respiratory and Circulatory Systems
  • Shortness of breath, can’t get full/satisfying breath, cough

  • Chest pain or rib soreness

  • Night sweats or unexplained chills

  • Heart palpitations or extra beats

  • Endocarditis, heart blockage

Neurologic System
  • Tremors or unexplained shaking

  • Burning or stabbing sensations in the body

  • Fatigue, Chronic Fatigue Syndrome, weakness, peripheral neuropathy or partial paralysis

  • Pressure in the head

  • Numbness in body, tingling, pinpricks

  • Poor balance, dizziness, difficulty walking

  • Increased motion sickness

  • Light-headedness, wooziness

Psychological Well-being
  • Mood swings, irritability, bi-polar disorder

  • Unusual depression

  • Disorientation (getting or feeling lost)

  • Feeling as if you are losing your mind

  • Over-emotional reactions, crying easily

  • Too much sleep, or insomnia

  • Difficulty falling or staying asleep

  • Narcolepsy, sleep apnea

  • Panic attacks, anxiety

Mental Capability
  • Memory loss (short or long term)

  • Confusion, difficulty thinking

  • Difficulty with concentration or reading

  • Going to the wrong place

  • Speech difficulty (slurred or slow)

  • Difficulty finding commonly used words

  • Stammering speech

  • Forgetting how to perform simple tasks

Reproduction and Sexuality
  • Loss of sex drive

  • Sexual dysfunction

  • Unexplained menstrual pain, irregularity

  • Unexplained breast pain, discharge

  • Testicular or pelvic pain

General Well-being
  • Phantom smells

  • Unexplained weight gain or loss

  • Extreme fatigue

  • Swollen glands or lymph nodes

  • Unexplained fevers (high or low grade)

  • Continual infections (sinus, kidney, eye, etc.)

  • Symptoms seem to change, come and go

  • Pain migrates (moves) to different body parts

  • Early on, experienced a “flu-like” illness, after which you have not since felt well

  • Low body temperature

  • Allergies or chemical sensitivities

  • Increased effect from alcohol and possible worse hangover

 

 

 

 

 

Lyme Disease Australia (lymedisease.org.au) share this information.

 

What is Lyme disease?

Lyme disease is an infection caused by a bacteria known as Borrelia. The bacteria, a spirochete, is transmitted when an individual is bitten by a vector ie tick.  Lyme disease can impact many bodily systems and organs and can, in some cases, mimic other illnesses ie lupus.  As well as giving people Lyme disease, the ticks often also transmit other diseases (co-infections).  We thank the Canadian Lyme Disease Foundation for their list of symptoms.

What are the symptoms of Lyme disease?

Lyme Disease is generally categorised into acute and chronic stages of disease, each with varying symptoms.

Acute Lyme disease

  • Flu like symptoms such as headache, fever, muscle soreness & unexplained fatigue.

  • Fewer than 50% of people with Lyme Disease develop the “bulls-eye” (or Erthema Migrans) rash a few days or even a few weeks after their tick bite (if they remember the bite).

Chronic Lyme disease

The following symptoms can be attributed to Lyme Disease when it has reached the Chronic stage of disease.

Head, face and neck:

  • Unexplained hair loss

  • Headache, mild or severe, Seizures

  • Pressure in head, white matter lesions in brain (MRI)

  • Facial paralysis (Bell’s Palsy, Homer’s syndrome)

  • Tingling of nose, (tip of) tongue, cheek or facial flushing

  • Stiff or painful neck

  • Twitching of facial or other muscles

  • Jaw pain or stiffness

  • Dental problems (unexplained)

  • Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose

Eyes and vision:

  • Double or blurry vision

  • Increased floating spots

  • Pain in eyes, or swelling around eyes

  • Oversensitivity to light

  • Flashing lights/peripheral waves/phantom images in corner of eyes

Ears and hearing:

  • Decreased hearing in one or both ears, plugged ears

  • Buzzing in ears

  • Pain in ears, oversensitivity to sounds

  • Ringing in one or both ears

Digestive and excretory systems:

  • Diarrhea

  • Constipation

  • Irritable bladder (trouble starting, stopping) or interstitial cystitis

  • Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

Musculoskeletal system:

  • Bone pain, joint pain or swelling, carpal tunnel syndrome

  • Stiffness of joints, back, neck, tennis elbow

  • Muscle pain or cramps (fibromyalgia)

Respiratory and circulatory systems:

  • Shortness of breath, can't get full/satisfying breath, cough

  • Chest pain or rib soreness

  • Night sweats or unexplained chills

  • Heart palpitations or extra beats

  • Endocarditis, heart blockage

Neurological system:

  • Tremors or unexplained shaking

  • Burning or stabbing sensations in the body

  • Fatigue, chronic fatigue syndrome, weakness, peripheral neuropathy or partial paralysis

  • Pressure in the head

  • Numbness in body, tingling, pinpricks

  • Poor balance, dizziness, difficulty walking

  • Increased motion sickness

  • Lightheadedness, wooziness

  • Seizures - often 'atypical'

Psychological well-being:

  • Mood swings, irritability, bi-polar disorder

  • Unusual depression

  • Disorientation (getting or feeling lost)

  • Feeling as if you are losing your mind

  • Over-emotional reactions, crying easily

  • Too much sleep, or insomnia

  • Difficulty falling or staying asleep

  • Narcolepsy, sleep apnea

  • Panic attacks, anxiety

Mental capability:

  • Memory loss (short or long term)

  • Confusion, difficulty in thinking

  • Difficulty with concentration or reading

  • Going to the wrong place

  • Speech difficulty (slurred or slow)

  • Stammering speech

  • Forgetting how to perform simple tasks

 

Reproduction and sexuality:

 

  • Loss of libido

  • Sexual dysfunction

  • Unexplained menstral pain, irregularity

  • Unexplained breast pain, discharge

  • Testicular or pelvic pain

General well-being:

  • Phantom smells

  • Unexplained weight gain, loss

  • Extreme fatigue

  • Swollen glands/lymph nodes

  • Unexplained fevers (high or low grade)

  • Continual infections (sinus, kidney, eye, etc)

  • Symptoms seem to change, come and go

  • Pain migrates (moves) to different body parts

  • Early on, experienced a "flu-like" illness, after which you have not since felt well.

  • Low body temperature

  • Allergies/chemical sensitivities

  • Increased effect from alcohol and possible worse hangover

America Centre Of Disease Control keeps the info snappy and bare boned: (But does address 'late' stage Lyme.

 

Early Signs and Symptoms (3 to 30 days after tick bite)

  • Fever, chills, headache, fatigue, muscle and joint aches, and swollen lymph nodes

  • Erythema migrans (EM) rash:

    • Occurs in approximately 70 to 80 percent of infected persons

    • Begins at the site of a tick bite after a delay of 3 to 30 days (average is about 7 days)

    • Expands gradually over a period of days reaching up to 12 inches or more (30 cm) across

    • May feel warm to the touch but is rarely itchy or painful

    • Sometimes clears as it enlarges, resulting in a target or “bull’s-eye” appearance

    • May appear on any area of the body

    • See examples of EM rashes

Later Signs and Symptoms (days to months after tick bite)

  • Severe headaches and neck stiffness

  • Additional EM rashes on other areas of the body

  • Arthritis with severe joint pain and swelling, particularly the knees and other large joints.

  • Facial palsy (loss of muscle tone or droop on one or both sides of the face)

  • Intermittent pain in tendons, muscles, joints, and bones

  • Heart palpitations or an irregular heart beat (Lyme carditis)

  • Episodes of dizziness or shortness of breath

  • Inflammation of the brain and spinal cord

  • Nerve pain

  • Shooting pains, numbness, or tingling in the hands or feet

  • Problems with short-term memory

The UK, Government info:

 

Early symptoms of Lyme disease
Many people with early-stage Lyme disease develop a distinctive circular rash at the site of the tick bite, usually around 3 to 30 days after being bitten. This is known as ‘erythema migrans’. The rash is often described as looking like a bull's-eye on a dart board. The affected area of skin will be red and the edges may feel slightly raised.
The size of the rash can vary significantly and it may expand over several days or weeks. Typically it's around 15cm (6 inches) across, but it can be much larger or smaller than this. Some people may develop several rashes in different parts of their body. However, around one in every three people with Lyme disease do not report seeing a rash.
 
 
 
 Lyme Disease: Signs and Symptoms
As well as (or instead of) a rash, people with Lyme disease may experience one or more of the following:
• flu-like symptoms: 

o tiredness (fatigue)

o muscle pain

o joint pains o headaches

o a high temperature (fever)

o chills 

o neck stiffness

• paralysis of the facial muscles, typically only on one side of the face (Bell’s palsy) 

• Nerve pains, which may be sharp or prickly

 
Later symptoms
More serious symptoms may develop several weeks, months or even years later if Lyme disease is left untreated or is not treated early on. These can include:
• pain and swelling in the joints (inflammatory arthritis)

• problems affecting the nervous system – such as numbness and pain in your limbs, paralysis of your facial muscles, memory problems and difficulty concentrating

• inflammation of the membranes surrounding the brain and spinal cord (meningitis) – which can cause a severe headache, a stiff neck and increased sensitivity to light • heart problems – such as inflammation of the heart muscle (myocarditis) or sac surrounding the heart (pericarditis), heart block and heart failure
 
Some of these problems will get better slowly with treatment, although they can persist if treatment is started late. A few people with Lyme disease go on to develop a range of chronic symptoms despite treatment. It's not known exactly why this happens, but researchers are looking into possible causes.
 

 

***

 

 

Of course ALL countries don't believe 'chronic' Lyme exists but ALL state 'late' stage Lyme symptoms and the symptoms aren't for the faint heart. They are debilitating and life threatening. 

 

When you search 'CAN LYME DISEASE KILL?' The response simply is, if the bacteria is left untreated it can go on to cause other symptoms. 

 

 

 

Its heart breaking that it takes people losing their lives and becoming more poorly for the people in power to sit up, listen and take action. 

 

We don't fight because we want pity, we fight because we WANT and NEED to protect our fellow human being. We are moving forward with more detailed symptom lists and the mention of 'LATE' stage Lyme but it hasn't been enough to grant us more funding or better medical treatment. 

 

When people mention cancer the world stops, when people mention Lyme - people turn their heads. We don't deserve that kind of treatment when our disease is also so life-threatening and we DO NOT HAVE A CURE. At present our diagnosis is a long drawn out death sentence. A hard pill to swallow at ANY AGE.

 

 

 

 

PLEASE - knowledge is power. Educate yourself and protect yourself.

XOXO

 

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SOPHIE'S
COOKING TIPS

#1
Feeling sluggish and rubbish when you have woken up? Get boosting up on bananas the more the better - they will help settle your stomach, boosting digestion, they are a mood enhancer, they will give you the energy you need and keep you full. Buy my book for banana receipe ideas.
 
#2
Wake up every morning and ATLEAST have one glass of lemon water before doing anything else! Ideally try to drink a litre of water. The lemon wakes up your digestive system ready for the day and has great cleansing properties.
 
#3
Check your dairy and meat intake - dairy can sit in your system for up to seven days unable to digest properly. Meaning other foods also get neglected and nurtients aren't absorbed properly and you feel extremely bloated. Go and smell your food bin, your stomach will be in that state. Rotting foods in your belly - hmm nice.
 
#4
DO NOT FEAR CARBS - THEY ARE NOT THE ENEMY! CARB UP!!
Bananas, Rice, Potatoes, Leafy Greens, Corn, Beans, Lentils etc PACK THEM IN GO MAD.
 
#5
NEVER COUNT CALORIES - NEVER RESTRICT!! These restriction 'starvation' diets who tell you to only eat 500 calories a day then have a treat day - where you binge out and eat WAY too much, is simply messing up your metabolism and on your binge days yours body stores all the fat meaning you gain weight because it knows it is going to go back into starvation mode and needs to hold onto every little thing it can. HELLO WEIGHT GAIN. 

Life is too short not to live it to the full, making yourself happy.

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