After speaking to my Professor yesterday because my blood results have been worrying we have put a little plan in place.
You may remember a few months ago about me applying to participate in a new trial. For a herbal treatment to help strengthen my immune system. The trial has been delayed and so my professor feels I need to start this treatment now.
He is concerned that my bone marrow is being affected.
There have been Lyme patients in the past who have undergone bone marrow transplants.
Bone marrow creates stem cells which helps fight infections and keep the body healthy.
Stem cells are immature cells and they can become any kind of cell in the body. Stem cells can become cells of the blood, heart, bones, skin, brain and muscles. These cells can be influenced and so can be either be used by the body to support its wellbeing or work against the body. This is how diseases such as cancers develop.
So more than ever it is important to strengthen my immune system so that my body can fight and ensure the cells are used correctly. This is why the Lyme suppresses the immune system, so they can influence the functioning of these immature cells because the body has no idea what really is going on.
This of course is very dangerous and one of the reasons my professor was concerned my local doctors were not taking action on such a worrying blood result.
We don’t want and can’t afford for these cells to become cancerous or not be used in a positive way to support my already weak body.
Symptoms of bone marrow disease:
- Pain: from headaches to joints.
- Anemia: causing fatigue and tiredness.
- Swelling: swelling of internal organs, spleen, liver and kidneys.
- Weight loss: due to sickness, infections, nausea.
- Night sweats.
- Frequent infections.
These may explain some of my recent symptoms .
I have getting horrendous pain in my right side from head pain, joints, burning, muscle pain and pain around my lung and rib area.
I will be collecting my bloods up from this week, tomorrow. So we will see what they come back with.
I am really hoping my neutrophils and white blood cell count have improved.
For the doctors & consultants my bloods get circled and flagged up but they are never explained to me and there is never any immediate action taken.
After last week’s bloods and my health being so bad, anything could have happened over the weekend and nothing would have been done.
Luckily my professor rang back within the hour of receiving my results and scheduled a phone call to discus further action but the lack of support and help from my own GP’s is worrying and upsetting to me.
I may laugh off my pain and carry on working regardless. Getting up and making the day purposeful. I do cry, I do get low and believe me the PAIN is often unbearable. I don’t know how I pull myself together and everyday I question if I will be able to.
The bottom line is my health isn’t in a great place no matter what brave face I paint on.
I wouldn’t wish this hell on anyone and that is what drives me to be so motivated and passionate about helping others and raising awareness.
At 24 it is all very daunting and that is half of the reason I always require alone time in my day because being 'normal' is SO draining and my reality causes me so much emotional upset which I don't want to put on other people or for them to see.
I know my health to many is too complex to understand.
I am up, walking and look fine- so what is the problem?
I guess I give up trying to explain anymore. It’s tiring and my God at the moment I am so busy just trying to make it through the day that any extra energies are too much for me to take on. It all drains too quickly.
People always say, ‘you look better!’ Or ‘I thought you were better?’
You feel awful because you know this is not the truth or the case. You know people are sick of you being sick and so you blame yourself for not being better.
Unfortunately, I do my best but I can’t control the war going on in my body. I have to accept I am very poorly and people can accept that or make judgements - I can’t change the truth.
I can’t change the way my body reacts and fights. I can only try to care for it.
For the mental and emotional strain I have programmed myself to simply bury myself in work to escape the reality of the situation and pain. As I hold on to any form of normality and try to make your negatives into productive positives.
That is my frame of mind.
So now we wait for my MRI scan appointment to come through to check my organs & gastro tract to see if there is any further actions that need to be taken or an explanation to my recent crippling gastro symptoms.
I will finish here, my head is spinning and all this 'health' talk today is making me tearful.
We keep fighting!
Thank you all, for you love and support. We have hit the big 7,000!!!
My lovely, loyal Instagram followers have almost reached 2,000. This warms my heart and shows me that my hard work really does have a purpose and shows me proof of why I must keep fighting.