So the sun may not be as friendly as I first thought.
It seems I am breaking out in a good old fever.
I know England is experiencing a heat wave right now too. But 40 degree heat is just out of this world - sizzling.
Last week when temperatures were 32 or so, I coped. Just. The shade was enough, I could handle the heat and the sun. Now, it’s just too hot for my body to adjust too.
So what climate works best?
Last week the days were the right heat but the nights were cold and I was shivering once the sun when down.
I was struggling stablising my core temperature with the hot and cold changes.
We are praying for the sun to go down, for some cool air.
Too hot and my head pressure goes through the roof. My head pulses and it feels like my head will explode. It’s the worst.
Too cold my joints and muscles throb and I stiffen up. Barely able to get up once I sit down, and walking hurts like hell. Grabbing handles and pens are a no go too.
So.. what symptoms has this extreme heat caused;
- gastro problems
- head pressure - pulsing
- itchy skin
- skin feeling blistered and hot
- craving carbs and sugar
- balance issues
- temperature control problems
- mood swings
All this needs to be noted, because when we go on the study tour across Europe in the beginning of fall the temperature should hopefully be warm, hot to your normal Brit for the time of year but probably still hoodie and pants attire for me. Shorts and t-shirts for everyone else. It will be interesting to see if that climate will suite me better.
I know I can’t cope with the deeply, freezing, wet winter’s we have in England.
Finding a place or places that may need to be on the escape list to help improve my health, if and when needed - need to be drawn up.
I know what you are thinking .. you can’t be away from home all year or just drop everything at the drop of a hat.
I know that.. but knowing that there are options or and this is a big one knowing there is somewhere we can seek relief is a massive thing.
Especially after traumatic inpatient experiences when I seriously felt like I would never see the light of day again.
So many will agree with me that we feel trapped in a torture chamber and knowing there is nothing to help, or relieve symptoms is a daunting and scary place to find yourself in.
This is why, counting down to holiday and coming here was such a massive thing to me. It was my hope, the hope I was clinging on to for some sort of a boost. Where it was mood, motivation, health and so on.
Sometimes it’s not just about relieving symptoms but it’s about realising why we fight through the horrible symptoms like we do.
My holiday wasn’t as I had dreamed but it was many things I never really thought too.
Symptoms have been heightened, memory flashbacks have been hard hitting, accepting circumstances and the climate has been an adjustment. But we have enjoyed great company, laughs, chill time, yummy food and an amazing atmosphere. We have been entertained and we have been pampered. I wouldn’t take anything back and am thankful for the memories we have made.
I think this idea of escape and having options available is such a big thing for me because prior diagnosis I fell in love with travelling. I fell in love with meeting new people, hearing their stories and how they coped with life so that I could maybe adapt and learn to enhance my own. Right up to diagnosis I was so set on travelling everywhere, somewhere always had to be in the pipeline. After diagnosis, a piece of the puzzle I’d been trying to find had appeared and it gave me a few months off without me feeling bad for ‘missing out’ or needing to jump on a plane. My focus was closer to home, coming to terms with my illness and listening to people going through what I was so again I could learn and deal with everything in the best way possible.
When you live with so much pain.. physical and mental. We have to accept and we go on the mission to make life as bearable and enjoyable as possible as well as protecting people from what we are battling through with our campaign work.
My travel taught me that people are what make the world turn around. The media bombard us with ideals and how we should be but that’s not reality. The people we see and who surround us everyday is what is real.
So. Yes, my holiday hasn’t been the big butty, swimsuit photo shoots, the 4am parties and the 8 hour a day sun bathing like social media would expect from being in such a holiday haven. At first I felt guilty, upset even that this wasn’t my reality holiday. Now, I see that this was silly. I don’t have a dream butty but that doesn’t mean I am worthless, the shade has been my best friend but that doesn’t mean I have neglected or being ungrateful for the sin and 11pm / midnight has been my bedtime, that doesn’t mean I have cut my nights short.
My health, has been up and down throughout but I am here! Believe me there have been days over the past few years when I didn’t know if I’d wake up or not... so here we are.
This is reality!!
The sun doesn’t always play ball with me and I have to accept that.
My body isn’t what I wanted or imgained but I am me. Nobody else can be me.
I have got to bed at a reasonable hour but also got up at a reasonable hour and made the most of the days.
Nothing can ever be perfect.
We learn from our mistakes and living through life but also form the real people around us.
We should understand that perfection is a myth but not lose hope or motivation about finding the best way to manage and live our lives.
It’s one of my main missions, to seek out answers and enhance my life as much as possible to have the best years possible on Earth.
I hope I can empower you and with being so open, like the people I learn from - I bring you peace and comfort in situations and circumstances that you find upsetting, challenging and tasking.
When we vow to see the best in all circumstances we really do splash the colourful paint onto our canvas.
Feeling sluggish and rubbish when you have woken up? Get boosting up on bananas the more the better - they will help settle your stomach, boosting digestion, they are a mood enhancer, they will give you the energy you need and keep you full. Buy my book for banana receipe ideas.
Wake up every morning and ATLEAST have one glass of lemon water before doing anything else! Ideally try to drink a litre of water. The lemon wakes up your digestive system ready for the day and has great cleansing properties.
Check your dairy and meat intake - dairy can sit in your system for up to seven days unable to digest properly. Meaning other foods also get neglected and nurtients aren't absorbed properly and you feel extremely bloated. Go and smell your food bin, your stomach will be in that state. Rotting foods in your belly - hmm nice.
DO NOT FEAR CARBS - THEY ARE NOT THE ENEMY! CARB UP!!
Bananas, Rice, Potatoes, Leafy Greens, Corn, Beans, Lentils etc PACK THEM IN GO MAD.
NEVER COUNT CALORIES - NEVER RESTRICT!! These restriction 'starvation' diets who tell you to only eat 500 calories a day then have a treat day - where you binge out and eat WAY too much, is simply messing up your metabolism and on your binge days yours body stores all the fat meaning you gain weight because it knows it is going to go back into starvation mode and needs to hold onto every little thing it can. HELLO WEIGHT GAIN.
Life is too short not to live it to the full, making yourself happy.