Managing symptoms lately has been a little harder than I thought they would be. I thrive on busy days and hectic schedules but boy sometimes, I just can't deal and adapt to my situations. 

Now many of us have lots of different triggers in many different ways. Whether it...

We are all so grateful and thankful for the lives we lead, the people we surround ourselves with, the adventures we experience and the memories we cherish. 

We are all human however, and have days when we simply can’t help but feel overwhelmed, exhausted and emotional. 

...

I'm shy, 

Behind eyes I cry,

To you, 

I want to do, 

All I can, 

Be the best human, 

Despite the pain, 

Despite feeling insane, 

That I do have a purpose and a meaning to be, 

Happy as can be, 

With you or without you, 

That is something I have to battle through, 

Sickness from up...

What is happening in Government?

You may have seen that recently Boris Johnson walked out of his job and our Health Secretary Jeremy Hunt took Boris' place. Leaving Matt Hancock to take Jeremy's is place as Heath Secretary on 9th July.

He was Secretary of State for Digit...

The word just causes me anxiety. I spend my life trying to pace but I don’t have the best relationship with pacing. Often ruling out my health problems and beating myself up, because I can’t go 1000 miles an hour, 24/7. 

I am young, look fine- so why?

If only it was that...

Many when you say you can’t have oil in your foods look and stare at you. Believing you are being fussy because look- you are skinny and could do with a bit of oil. 

People know little about the make up of oil and why for someone who has a surpressed and weak immnu...

Papa, always gets bitten. During our holiday he had mozzie bite after mozzie bite. 

On arriving home things haven’t changed. He is always getting bitten and on going around Great Eccleston show with all the animals Father has once again got bitten.

Alex took him to the h...

What an amazing morning and a big thank you to all our wonderful staff and their partners that took on the walk to Scorton and back to raise money for Lyme Disease UK and Invisiyouth. 

I am so grateful to you all and the sun was on our side. 

Don’t worry! Still want to s...

Aching in my joints, muscles and bones all the time,

Never feeling in my prime,

The sun sometimes a friend sometimes a foe,

I never really know,

My battery pack in flashing,

The rain is lashing,

The heat,

Makes me skip a heart beat,

Inside I know something isn’t quite right,

Tr...

Well, well. 

I know one of my favourite theatre plays is Evita which is about an incredibly, strong and inspiring woman from Argentina but I never believed it would be the country that would highlight my story in their press.

I wouldn’t have known about this if it hadn’t...